Comunità di lunga degenza, post-vaccini e malattie croniche
Former patients founded this clinic – that is why we always stay in touch with the community
Giornata di sensibilizzazione Long Covid 2025:
(Source: patientresearchcovid19.com)
Download PDF
Comunità di lunga degenza, post-vaccini e malattie croniche
Support groups are important to navigate through chronic illness, but once they reach a certain size and/or are run by admins that lost hope of recovery, the negative effects often outweigh the positive ones and it is more beneficial to leave a toxic environment, because as Jed Bennett calls it – misery often loves company.
One of the support groups that we recommend, because they value the same principles as we – scientific, fact based information and positive communication is the Long Covid Apheresis Community (lcacommunity.org). Our Co-founder Markus Klotz has founded the predecessor organisation of the Long Covid Apheresis Community – the former Apheresis Association. You can find an article about this here.
Unfortunately many support groups have outgrown the size where they can be useful to members. Admins and members that already have given up hope and suppress positive information are likely not good company as Jed Bennett describes in this little mini-series of three short videos: Mini-series with Jed Bennett in our blog
Two studies that hint to why such support groups are prone to become this way, are about the lack of serotonin (and potentially dopamine) and cortisol, which in combination or on their own will affect the psychological wellbeing of a person massively.
A person in front of a keyboard affected by the above and with the power to decide about what is published or not – we leave the result to your imagination.
Below you find further information about a project of the Long Covid Community, which our Med Team supported – an Apheresis Resource for treating doctors of PCS/PVS/CI patients:
Risorse per i medici curanti di pazienti affetti da PCS/PVS/CI
Il nostro team medico sostiene il lavoro della Comunità di lunga degenza / Post Vac e Malattie Croniche
Last year, many of our patients postponed their treatment decisions and only arrived this year. As early treatment is very beneficial, this did not sit well with us – especially as most of the time the reason for postponement was a local health professional who did not have the in-depth knowledge to support them. This is why we have supported the community with a project to gather and share knowledge about (H.E.L.P.) apheresis for medical professionals:
Medical Professionals get full and free access to LCA Med with all it’s content. Our Medical experts and medTec experts have contributed to this project:
- Dati aggiornati da parte dei medici sui risultati del trattamento, sulle potenziali controindicazioni, sui rischi e sugli effetti collaterali
- Formazione, corsi e manuali
- Confronto di tutte le forme di aferesi esistenti per Long Covid
- Aferesi per il lungo Covid Medical FAQ con possibilità di aggiungere domande
- Guida alla pre-cura e alla post-cura per i pazienti sottoposti ad aferesi per Long Covid
- Accesso al supporto diretto e personale per i medici (diagnosi, co-trattamenti)
Dr. Irina Pavlik Marangos has extensive experience in treating Long Covid, Post Vac and Chronic Illnesses patients with Combination Therapy including Help Apheresis and co-treatments like IV treatments, Medication protocols, Hyperbaric Oxygen and Cryo treatments. She has been working almost a decade in medical research before returning to the frontline as a treating clinician.
Silke Fischer is one of the leading technical experts in Apheresis for Long Covid. After over two decades in the industry, one decade at B.Braun Medical, she now supports projects internationally.
Ha formato la maggior parte dei medici e degli infermieri di Help Apheresis a Cipro, in Svizzera e in Germania e il suo team ha trattato centinaia di pazienti in aferesi Long Covid.
È esperta di applicazioni tecniche e formatrice certificata e ha partecipato allo sviluppo di macchine per aferesi e dialisi.
Markus Klotz has founded the predecessor organisation of the Long Covid Apheresis Community (you find their website here) – the former Apheresis Association. You can find an article about this here
Se siete medici professionisti, iscrivetevi subito gratuitamente a LCA Med Resource:
Documentario di ARTE TV "Long Covid - Healing in Cyprus" (Lungo Covid - La guarigione a Cipro)
ARTE TV Documentary ‘Long Covid – Healing in Cyprus’ about our Apheresis Center
The documentary aired in June 2024. A team of journalists from European TV channel ARTE TV accompanied three of our Long Covid and Post Vac Syndrom patients and interviewed them and our team at the Apheresis Center. Here you can watch an excerpt of the documentary which is also easy to watch for patients with cognitive dysfunction, brainfog and related migraines. English audio by Dubly.
Since the documentary was filmed, new scientific findings have been made, you can find the latest studies published here.
Markus has published a blog post here, where he describes the developments and updates since the documentary was filmed.
